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Post by Lungsey on Oct 29, 2009 6:49:36 GMT -5
I wish I could come help out, I really do ! don't lie to me, y00 just want my baby hedgehog
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Post by Lungsey on Oct 29, 2009 6:50:23 GMT -5
This sentence is what i think too, always. It is an evidence for me. Now i would like to add m0ng0 is sexier than y0da yeah.... that is very true...
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Post by maidli2 on Oct 29, 2009 9:14:35 GMT -5
Not sure for the hair tho
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Post by borracha on Nov 8, 2009 20:18:36 GMT -5
Hey, Lungsey. I just got back and I'm catching up with all this... I really don't know what to say it feels all I can say is try to keep positive and it sounds so stupid but that's really all you can do, just not to give up and try to be strong or the both of you. My father got a tumor removed a few weeks after I went away, I dind't even know he had cancer (my mum kept it from me since I was about to travel) and I learnt it 10.000 miles away, on the phone and only cause I janked it out from her... Luckily they could remove the whole thing and he's recovered ok, last test results where good. It's a shitty situation but at least your next to him
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Post by Lungsey on Nov 9, 2009 18:50:01 GMT -5
Woah Borracha, that's terrible to have to go through. Thank god your dad's okay now. This is such a horrible disease, it is scary shit Thanks for your kind words. We are holding on, enjoying the things we can still do. We are also doing a 10 week-work shop about meditation and stress-reduction. Meditation is really helping! I never thought i'd be the meditation kind, but it helps... I'm now working on a digital photobook for Mr. Lungs to give to him for christmas. I've now got 34 pages ready with all kinds of reminders of the fun stuff we have done so far. There's pictures in it from the weeks away, the garden etc, receipts from all sorts of different places we went to, good luck cards, the lot. We got to see the Levellers the other week, which was great but sad aswell. We've been going to Levellers gigs for about 10 years and i know one day i won't be able to anymore. So we decided to go again this wednesday Stressfull times but there's some good in it too. One thing i feel i need to tell friends, so i will mention it here too, even if it isn't a very uplifting thing to do... We had another meeting with our doctor because we want her to repeatedly report what my husbands' wishes are concerning euthanasia and stuff. We both have very clear ideas about this and do not want to be kept alive if there is no reasonable life-expectancy. We don't want to get to the stage where Rob (Mr. Lungs) is unable to voice his wishes and he is not allowed to be euthanised. So it is important to have our doctor report his expressed wishes throughout his illness. Euthanasia is possible in our country but it can be a difficult struggle if you have to fight for it on your own. I seriously want to let you lot know how important it is to express your wishes on these things while you still can. Let your family and partner know what you want, resuscitation-wise, euthanasia-wise and ceremony-wise. I know this is a horrible thing to have to think about, or to have to talk about with your loved-ones but trust me: it is better to do the talk now, then to not know what your loved ones wishes are should fate reach your frontdoor. I don't want this thread to be a downer, but i really really want you lot to think about this. - that's it. Thanks. And to everyone that has to deal with crap like this: hold on tight, live for the moment, carpe fuckin diem!!
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Post by maidli2 on Nov 10, 2009 2:33:47 GMT -5
Oh My God
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Post by borracha on Nov 12, 2009 19:03:34 GMT -5
What happend, dimples? I wondered where you were... anyways I'm glad that you're ok Lungsey, the only time I tried to meditate I fell asleep! For what you say it seems thet you're trying to focus on the good things and that's a great -and hard- thing to do, keep it up! On the last wishes thing, it's not usual for people to write testaments here (some do but not most) but everybody arround me knows that I want to be cremated and thrown away somewhere (preferibly the sea) I would really like to have a viking funeral (seriously, I saw that in a movie and I really liked it) but that's not very realistic so I stick to the ashes and throwing thing...
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Post by Lungsey on Nov 16, 2009 19:25:20 GMT -5
Bad news on the horizon. It's starting. Chemo did not have the effect they said it had. I am terrified. And lost for words.
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Post by barriers on Nov 16, 2009 19:36:28 GMT -5
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Post by borracha on Nov 16, 2009 21:21:12 GMT -5
My thoughts are with you and Mr Lungs. Be strong
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Post by dimples... on Nov 18, 2009 21:19:02 GMT -5
My heart and thoughts with you hon...((hope and hugs for both of you))
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Post by Lungsey on Dec 11, 2009 5:11:44 GMT -5
Sorry, i've been away for a bit. We had another week away, to the beach this time round. Had a good one, are planning a new week away for february, hoping things will be well enough to actually go. I thought i'd do a little update thingie before posting again, so people that know about my situation can read what's been going on. I will reply to PM's shortly and will start posting again soon too. Maidli my darling and my dear man in the shadows, emails will be replied to shortly aswell So the week was wonderful, thankfully we did not spend every moment thinking it could be our last holiday ever. Mr. Lungs did decide to refuse any further treatment. I can understand him, the things this new chemo could and most probably would bring are far from just ordinairy nasty. The side-effects are horrendous. And chances of it doing him any good (that is, giving him a little bit more time) are minute. So he is choosing quality of life rather than quantity. I get that. I think it is best for him, but also for me. We spent hours in our luxury holiday home which was actually bigger than our own house ;D and had quite some brilliant laughs about nothing in particulair, grabbing life by the throat as agreed on when all this started Ooooh-errr: home.orange.nl/robvdbijl/Sky Groet board.jpg[/img]
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Post by solitude on Dec 11, 2009 7:11:05 GMT -5
Ah. . . . .that photo is breathtaking! Missed you, dear.
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Post by Shoesh on Dec 11, 2009 15:21:26 GMT -5
Yes, it really is a beautiful picture. I'm glad you enjoyed your week in luxury. Nice surroundings by the looks of it. Good to have you back.
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Post by Maidli on Dec 11, 2009 15:40:53 GMT -5
So he is choosing quality of life rather than quantity. [/img][/quote] Nobody is really deeply able to think of life and see it like this except when you're in front of doors. The fourth elements are reunited into your living pic, but here love, the hidden fifth one, appears as the majestic one hey
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Post by borracha on Dec 12, 2009 0:17:30 GMT -5
Yes, it really is a beautiful picture. I'm glad you enjoyed your week in luxury. Nice surroundings by the looks of it. Good to have you back. What she said
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Post by dimples... on Dec 16, 2009 3:19:26 GMT -5
Awemazing Lungsey
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leaveit
Initiate
Don't fool yourselves, she was heartache from the moment that you met her
Posts: 189
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Post by leaveit on Dec 30, 2009 2:52:41 GMT -5
I can't begin to say how much this thread moves me. The best to Lungsey and Mr. Lungs.
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Post by Lungsey on Jan 31, 2010 4:57:13 GMT -5
Thanks everyone. I can't believe it's been so many weeks since i posted an update. Borracha, i hope your dad is still doing well, good thing they caught it at an early stage! *shudder* D... i am glad to hear you are going strong no matter what life throws at you. Barriers my sweet, i can't see your post...? What did you do with it? This is no time to play Confuse the Dutchy So this is life in our part of dutchyland: Now that Mr. Lungs decided to not get any more treatment, we feel very lucky that this disease seems to be taking its time. There's days he feels ill-ish but it is all relatively under control. The thought that things could go wrong at any time is scary, but i try to remind myself of the fact that this is the case with any of us - nobody's safe from everyday harm lurking around the corner. It is just that i know my husband has a monstrous thing inside of him that will one day take him away from me. And with that he is close to death and it is a given that we can't hide from. We did manage to move his dementia parents into a care home. It is a good place, not so much the end-stage care home we were afraid of, but a privately rented accommodation on one of the floors in a care home. When they go worse and are no longer able to care for themselves, they will just be moved into a different unit on a different floor. So with the move his parents are still together and we lucked out on them getting this place near their own home, in their own neighbourhood and at about the same distance from us as they were before. I feel so thankful for the fact Rob was able to help move them. I did all the organising and packing, we had friends doing all the hard work and Rob was able to support his parents. At least now Rob knows that when his time is up, his parents are in a good place and i don't have to do the move on my own. Healthwise we are both exhausted. My hernia wasn't happy with the move and i haven't been able to re-cooperate from my operation properly. We are looking forward to our week away, this friday. I have started work again, i have to be back on a 36 hour a week-scedule by april or i will lose part of our income. Seeing as i am the only one with an income and we want to keep up with those weeks away, i can't afford to lose any money. Plus this illness is hell to have to pay for. So i am keeping my fingers crossed that i will be able to do the work, though at this moment i can't imagine myself working 20 hours a week... Duty calls, ma man is complaining he needs a cup of tea. I keep telling him to get his lazy arse off the sofa and get it himself Back later.
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Post by Shoesh on Jan 31, 2010 6:36:49 GMT -5
Thanks for the update. My thoughts are with you guys.
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Post by solitude on Jan 31, 2010 14:21:46 GMT -5
Love to you both.
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Post by borracha on Jan 31, 2010 14:36:28 GMT -5
Hey Lungs! Glad to hear you're doing Ok given the situation. Enjoy your week away! Oh and my dad's ok, thanks for asking
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Post by Maidli on Feb 1, 2010 6:13:35 GMT -5
Thinking of you , birdies
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leaveit
Initiate
Don't fool yourselves, she was heartache from the moment that you met her
Posts: 189
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Post by leaveit on Feb 2, 2010 5:25:12 GMT -5
Lungs, with all honesty, i tried to have the most objective view while reading your post and what i came up with was feeling really sad. It is sad too see someone so sick and, unfortunately, i have seen many sick people, kids, lately. It's truly a shame that it has been discovered so late. But look on the bright side: you had chances that weren't given to many and you chose to make the best of it. It was really the best thing you could have done. I admire honest, corageous, intelligent people with a heart, so you know how much i really appreciate you.
We all know it's a real unfair life and we know you don't deserve what you got and I'm really hoping that some kind of justice will be done - I'm sure it will, after all you do deserve it. I'm keeping my fingers crossed and you know I will be doing my part. I have stated my support to you in the reply to the pm you sent me - so you know all this but it's never too much to underline it.
I wish you the best.
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Post by c00kie on Feb 3, 2010 3:24:55 GMT -5
i don't know how to deal ?: all my L@VE p.s
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