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Post by gr0undzer0 on Apr 27, 2011 8:08:19 GMT -5
Please you all, you all, you all... Our dear friends Lungsey and Rob need you, now more than ever...  So please be there, and send them your prayers, your thoughts, your words, your hugs, your love ... Be there.  Thank you all I second that ! |
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Post by Lungsey on Apr 27, 2011 14:32:48 GMT -5
Thank you Maidli and m0ng0, thank you so much Yeah, things took a turn for the worse.... not quite unexpected but always scary as hell. Good things first: we went to the beach, and we went to see the musical Hair. Both events were accompaneed by this fuckin illness. Rob was tossing up his meals more and more. We also went to spend an entire WEEK at the beach, only last week, see pictures below ;D But.... during this week his stomach got worse and worse (so we didn't enjoy the week as much as we should have, but we managed to spend 4 afternoons in the sun at a beach resort nonetheless!), and last weekend we had to call the emergency doctor numerous times (thankfully we were back from our week away). Last monday Rob was kept in hospital, and we only just returned today. At the beginning of all this Rob said he did not want to have to stay in hospital, but there was no escaping it. We were extremely lucky because the nurses on the ward decided to make up the bed next to him so I could spend the nights with him. Aaawwww, bliss eh! The doctor wanted to have a CTscan done, on either wednesday or thursday, and Rob would get the results on friday, after which he would probably be allowed to leave the hospital. I went in like a fuckin lion - I told them no way was he waiting 2 days for a scan - I respect that there are other sad stories and people needing scans, but Rob needs it the most. If he only has a few days or maybe weeks to live, he is not spending them in hospital. I told them we just had his mum cremated 3 weeks ago, and about his Alzheimer dad, about how I have to take care of all of these things and am barely keeping my own self harm issues in hand. Then I said the hospital owes Rob big - because of the malpractice suit we won. The doctor seemed to take things seriously, left and *poof* Rob had his scan about an hour later  and the results came back this morning. Scan result shows that the tumor has pushed Rob's stomach upwards through his diaphragm, which means his stomach is now working like some sort of funnel. This means he is off solid foods for whatever life he has left. I just went to get all kinds of yoghurts, breakfast drinks etc. Poor baby.... he is taking it quite well. I am having a much harder time with it. It makes me feel bad that i am struggling more than he seems to be doing. Fucking horrible disease. So now we are home together for however long we have left. Tomorrow we are having our doctor over to talk about euthenasia again, then in the afternoon we are making final disicions about Rob's cremation with the funeral people. This is all getting very very close to the end. Needless to say i am scared shitless and hanging on best I can. M0ng0 darling, you told me years back: be strong for him because he would be for you if the tables were turned. This is still keeping me on my feet. Thank you! And now, to make you just a tat jealous aswell: This is where we spent our week away, 26 degrees, right by the beach in a mega deluxe appartment: ![]() home.orange.nl/robvdbijl/Lungs/Noordwijk aan Zee 085a.jpg[/img] With this view...: ![]() home.orange.nl/robvdbijl/Lungs/Noordwijk aan Zee 128a.jpg[/img] MUWAHAHAHA! |
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Post by Maidli on Apr 27, 2011 15:16:03 GMT -5
I went to the sea myself with this hot summer time weather, I swam kilometers in its coldness . Believe me hun it was really really cold ;D Oooooh and I know you both caught and received my daily waves and prays.... + Same sea .... |
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Post by frauleinkül on Apr 27, 2011 15:19:20 GMT -5
You are strong beyond belief, Lungsey - even though and when you don't feel that you are. Prayers, thoughts, words, hugs and love to you both. (and that is a mighty fine looking beach ) |
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Post by Grumpella on Apr 27, 2011 16:24:27 GMT -5
My thoughts and prayers are with you both.
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Post by solitude on Apr 27, 2011 18:59:23 GMT -5
Peace and love to you both. xx00xx
You know I am here for you.
Thanks for the update, my dear friend.
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Post by barriers on Apr 27, 2011 19:52:55 GMT -5
You're both in my heart right now. I hope that when I need to be I can be half as strong as you lungsaroo. I admire your strength.
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Post by grangerlang on Apr 28, 2011 0:34:36 GMT -5
All of my strongest, best thoughts are being sent out to you, dears. We love you, Lungs <3
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Post by beyondthepale on Apr 28, 2011 5:52:50 GMT -5
All the best from Australia Lungsey. Stay strong.
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Post by Shoesh on Apr 28, 2011 12:08:14 GMT -5
Your strength is amazing, as is your courage to still go out and live your lives to the fullest.
You're giving this horrible disease a run for it's money and are not giving up without a fight.
And your courage was rewarded by a very gorgeous *jealous!* get away!
Good for you, you guys 100% deserved it.
Sending you positive vibes!
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Post by solitude on Apr 30, 2011 17:09:21 GMT -5
Just listened to your version of wywy. relax and float downstream...... Tried to shorten the space between us. life flows on within you. . . .fucking grasp it!! love you! |
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Post by solitude on Apr 30, 2011 17:19:11 GMT -5
oh..and at the end of your version I totally picture myself in a boat on a river.....thanks!
peace to you both
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Post by chapeuzinho on May 3, 2011 4:30:52 GMT -5
Much love to both of you. The beach retreat looks lovely. We just spent a week in beautifully sunny Cornwall with our mum.
It is such a fuckin' fuck of a disease, but one thing it shows is how incredibly strong, resilient and positive we can be.
My thoughts and love are with you.
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Post by Lungsey on May 5, 2011 5:29:24 GMT -5
Thank you so much. I am glad you are making the best of your time with your mum.
Here is a copy and paste from my facebook, sorry, can't bring myself to type this again. Thank you everyone.
I think Rob will probably decide that enough is enough sometime next week. It is going to be glorious weather the next few days and we are hoping to spend them together in the garden, in the sun. I have finished 2 photo books which I hope will get here in time for Rob to see. One is of all the things we did in 2011, another is of all the good things we did in England throughout these past 30 years.
Please think of us - I know you have been thinking of us for a long long time and it really does help. These next days are going to be bittersweet, hopefully Rob will feel better and will keep his decision off for the week, but our goodbyes are very near.
It is better to see him go with dignity and without pain and too much discomfort. I would rather lose him now than have him hurting.
Please keep him in your thoughts.
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Post by solitude on May 5, 2011 6:08:44 GMT -5
What a thoughtful gift--enjoy your photos. Sending good weather vibes and love for you both! |
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Post by Grumpella on May 5, 2011 6:29:54 GMT -5
Sending you both thoughts of love and strength.
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Post by comejanuary on May 5, 2011 6:57:24 GMT -5
I wish peace to both of you, together and individually.
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Post by Lungsey on May 5, 2011 7:09:28 GMT -5
Thank you, i know we haven't always seen eye to eye but i appreciate this, thanks katey.
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Post by Fields at Midnight on May 5, 2011 9:32:33 GMT -5
Thoughts and prayers are with you Lungs.
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Post by frauleinkül on May 5, 2011 13:38:30 GMT -5
All the love in the world your way, Lungsey. All the love.
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Post by chapeuzinho on May 5, 2011 17:38:16 GMT -5
I will be thinking of you and Rob, much, much love to you both.
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Post by Maidli on May 6, 2011 1:36:15 GMT -5
♥♥♥
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Post by Lungsey on May 9, 2011 5:33:01 GMT -5
Please think of us today. This is it.
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Post by gr0undzer0 on May 9, 2011 5:45:58 GMT -5
Take care, we are all here for you
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Post by Maidli on May 9, 2011 5:53:29 GMT -5
Indeed. All with you. All our love.
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Thank you all 
and the results came back this morning.
