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Post by Lungsey on Feb 3, 2010 13:57:14 GMT -5
Thanks you guys c00kie, that was sweet Getting ready for our week away this friday. Just did the not so nice part, put phonenumbers of local doctors, hospitals and stuff in our mobiles. Just in case. Got all our meds ready, there are so many you'd think we are planning an overdose for the entire area. Tomorrow i will start packing the normal stuff Lets see if i can make you lot feel really envious by showing you where it is we will be staying....
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Post by Lungsey on Feb 3, 2010 14:07:20 GMT -5
ah yes... www.herperduin.nl/Bungalows/typebb.htmWe have the bungalow in the upper left corner (near the Z for zuid = south), overlooking the fields ;D and this is about 5 mins away from it (the blue lake thingie on the map): I doubt there's gonna be many peeps there during this time a year, holidays here don't start till week after next and we are in a pretty secluded part of the grounds. Heheheheheheh.
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Post by Shoesh on Feb 3, 2010 17:33:41 GMT -5
you're not going to start a cult are you? Have fun you guys! Watch out for squirrels.
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leaveit
Initiate
Don't fool yourselves, she was heartache from the moment that you met her
Posts: 189
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Post by leaveit on Feb 5, 2010 5:25:34 GMT -5
Have a nice week end.
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Post by Lungsey on Apr 17, 2010 13:47:01 GMT -5
Bummed because of the Lanegan gigs. I am afraid these won't take place because of that Vulcano crap and what if Rob can't make it to a newly sceduled gig.... sorry to be selfish like this, but i want to see Lanegan with my man, because i doubt i'll ever see him once he's gone
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Post by grangerlang on Apr 17, 2010 22:15:29 GMT -5
That's not selfish at all, Lungs. In fact that's probably the complete opposite. I'll keep my fingers crossed for you guys. Maybe if Dave's not on your side of the ocean yet, Mark can snag someone else to start with? He knows enough bloody bands, surely someone can step in
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Post by Shoesh on Apr 18, 2010 17:22:20 GMT -5
Like I just PM'ed to Barriers, if Gaw forbid the gig is cancelled, I'm petitioning for Lanegan to do a performance in your living room. I bet we could get that sorted.. fuck yeah!
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Post by Lungsey on May 14, 2010 5:08:39 GMT -5
Aaawww, all this volcano crap from a few weeks back...... today we sent off a package to Barriers because we got to stay in his hotel for a night, bless his little heart Just wanted to post here because we are..... off for another week ;D Stonehenge is getting nervous, poor thing isn't used to being left on her own quite as often as this. I am getting nervous because it is that old familiair feeling of Woohoo- we're going on a holiday versus Ugh- what if this is the last one. It doesn't seem to be something one gets used to. I wish i could just forget about this illness, and just enjoy enjoy enjoy. Mr. Lungs isn't in the least bit nervous. He is just sitting there toking away and enjoying his life I am very grateful for his strong, buddha insights. It is helping him through this. I shall be back banning people before you know it
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Post by solitude on May 14, 2010 16:13:54 GMT -5
I am very grateful for his strong, buddha insights. It is helping him through this. Bless his little heart as well.
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Post by Lungsey on Oct 17, 2010 6:14:22 GMT -5
LONG POST!!!!! So it is now months later. I've kept in touch about this through PM, email and Facebook with a lot of friends from here. Throughout these months i wasn't sure if i should keep posting updates, every little fun thing we did (and we did LOADS of fun things) felt like talking about it would jinx the fact things went okay-ish and we were getting through this pretty well. But now i have found the energy to post an update on Facebook (thanks to Foz should you read this). And i decided i should post here, too. There's probably lots of new peeps reading this and not knowing anything about this. In a nutshell: ugh. So we did do a lot of cool things, seeing as we are all about the enjoy-life-while-you-still-can. Here's a little flashback in pictures ;D We went on a 2 hour canal-trip through our city, just Mr. Lungs and myself, with a volunteer-boatman showing us the best places! It was my birthday prezzie for Mr. Lungs home.orange.nl/robvdbijl/Rondvaartklein 1.jpg[/img] home.orange.nl/robvdbijl/Rondvaart klein 2.jpg[/img] We managed to get to England!!!!! Thanks to our lovely criminal-minded Scouse friends who brought weed which Mr. Lungs now needs medicinal, heheheh ;D home.orange.nl/robvdbijl/Hastings2010klein 1.jpg[/img] home.orange.nl/robvdbijl/Hastings2010klein 2.jpg[/img] Our toilet, which we decided to decorate with all the wonderful things we are experiencing during this sad and final part of our life together, is sooooo different from the last time i posted a picture... home.orange.nl/robvdbijl/Herfst 2010 klein 1.jpg[/img] Not at all bad huh? But now things are heading in the wrong direction. I am finding it very hard to talk about this, so i decided to do a simple copy and paste from Facebook. It sounds harsh and it is harsh, so don't read this if you are especially touched by illness and cancer. I am too tired to clean it up, so this is it: Sorry this is long. I did warn you
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Post by solitude on Oct 23, 2010 17:06:38 GMT -5
Always good to hear from you, dear. Fabulous photos! Sending you both peace and love.
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Post by Lungsey on Mar 2, 2011 15:43:53 GMT -5
Things are slowly getting worse.... I have no idea how long we will be able to do things we want to do... For now we are grabbing life by the throat by: - booking into a really fancy hotel at the beach this friday and saturday (though I have a cold and hope that won't force us to prospone) (LUXOURY SEAVIEW ROOM) - tickets for the hair Musical at the Ahoy in Rotterdam mid march (without the planned night at the SS Rotterdam cruise ship-hotel) - tickets for Cat Stevens/Yusuf Islam for mid may (PLUS a night at the SS Rotterdam cruise ship-hotel!!) - tickets for the Levellers early june (but haven't bought them yet, should do but it is such a long time away) And who knows, if Mr. Lungs' arm is better: another week in England? Anyone have any spare cash they like to throw our way? DEAR LORD - 2 tickets for Yususf bloody Islam is a total of €153,70!!!! FOOKIN HELL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! The things we do for love eh........ Barstard!
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Post by gr0undzer0 on Mar 8, 2011 20:25:26 GMT -5
we are all with ya my dear! Just keep living and loving life one day at a time !!!!
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Post by Maidli on Mar 9, 2011 7:41:53 GMT -5
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Post by Lungsey on Mar 10, 2011 12:19:15 GMT -5
Thank you my dear friends Today I heard my psychologist will be euthanized this week after a 3 month battle with cancer. She suffered cancer 5 years ago and seemed to have outlived the bastard. It came back with a vengeance. We are both so sad. I have not felt enough strenght to mention this here, but Rob is feeling worse. He is having more and more problems with his stomach. God i am so scared of losing him.
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Post by Grumpella on Mar 11, 2011 4:37:18 GMT -5
Sending good thoughts your way, Lungs!
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Post by barriers on Mar 11, 2011 23:31:10 GMT -5
I never know what to write in this thread Lungs but I wish you guys nothing but the best. Miracles happen and if anyone deserves one it's you two.
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Post by Lungsey on Mar 12, 2011 4:56:38 GMT -5
Thank you I know it can be hard for people to comment, it is a shitty situation to be in and knowing it will get much much worse before my life can be built up again is frightening to say the least. I always feel doubtful when posting about Mr. Lungs, i don't want to bring people down or touch the hurt in so many others that have had to deal (or are still dealing with) cancer. When i started this thread almost 2 years ago, i honestly didn't think it would go on for this long - Rob had a very short prognosis which we now believe was his initial doctor's attempt to make it look like there was nothing he could have done, had he discovered the disease sooner. We filed a complaint against him and won, the legal claim is still ongoing. A group of his peers found the doctor to have failed timely examination and to have failed giving us the proper psychological support/directing us to psychological support. It is a great feeling that the initial doctor was found guilty; we hope he will be different towards other patients after the result of our complaint. Also, he gave a lecture on the importance of screening and examination, together with Rob's current doctor (oncologist) at the support home we have been going to since 2009. We like to think it is part of his slap on the wrist. Rob is still with me. Neither of us expected to see spring 2009 together and now we might just see spring 2011. On bad days, like the past week, we doubt what will happen and we feel death could be just round the corner. Times like that freak me out no end. I am so scared of what will come next. I do not want him in pain. We have organised everything well enough so he will not have to suffer. Now that my psychologist Pieternel is dying, things hit home even more than they would in other times. Pieternel has helped me cope in the first 2 years; i know she will always be part of me. I am beginning to think i may not work in psychiatry forever - i would feel very proud to be able to help people dealing with cancer. It is one of the thoughts i have when i think about life in say, 5 years from now. Oh my, where did this post come from... Errrrr yes, i started this thread because my husband's illness is something that surrounds me everywhere i go. It is always on my mind, if not screaming in my face, it is lurking in the background. I didn't want to bring my emotions into every post i make, so this thread is the update place. And, as it turns out today aswell as on many other days, it is my little bit of OW-space to spill my guts so i can move on posting silly stuff elsewhere.... Now i am going to have breakfast with the man i love and hopefully sit outside in the early spring sunshine for a bit..... x
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Post by Fields at Midnight on Mar 12, 2011 17:15:16 GMT -5
Lungsey, you are such an inspiration to me. Sending positive thoughts your way.
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Post by Lungsey on Mar 13, 2011 4:01:53 GMT -5
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Post by solitude on Mar 13, 2011 16:31:33 GMT -5
- i would feel very proud to be able to help people dealing with cancer. It is one of the thoughts i have when i think about life in say, 5 years from now. And, as it turns out today aswell as on many other days, it is my little bit of OW-space to spill my guts so i can move on posting silly stuff elsewhere.... Awesome!! I am sure you have already helped others. This place can be therapeutic, eh?
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Post by Lungsey on Mar 14, 2011 7:58:14 GMT -5
It does.... Pieternel, my psychologist, died last friday. I just heard. May she rest in peace.
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Post by gr0undzer0 on Mar 18, 2011 3:48:24 GMT -5
“Do not dwell in the past, do not dream of the future, concentrate the mind on the present moment.”
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Post by Daveym on Mar 30, 2011 16:16:30 GMT -5
I have been away a while, so just read this from start to finish. Cant say much apart from it moved me a great deal (this is an understatement). People often say live for today and make the most of what you have, you have been doing that. Keep strong lovely. xx
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Post by Maidli on Apr 27, 2011 7:19:02 GMT -5
Please you all, you all, you all... Our dear friends Lungsey and Rob need you, now more than ever... So please be there, and send them your prayers, your thoughts, your words, your hugs, your love ... Be there. Thank you all
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